|
AFRICA Motor Neurone Disease Association of South Africa
Diane Heron
P.O. Box 781880
Sandton 2146
Gauteng, South Africa
Tel: 27-21-531-9744 or 27-11-706-4883
Fax: 27-21-531-6222 or 27-11- 463-6855 Email for Diane Heron: dianeh@iafrica.com ALS of South Africa
Dr. A.H. Borowitz
42 Victoria Street
Oaklands 2192
Johannesburg, South Africa ARGENTINA Asociacion Distrofia Muscular
Dr. Alberto L. Dubrovsky
Cordoba 5824, Buenos Aires 1414 Argentina
Tel: 54-1-773-1714
Fax: 54-1-956-1471 or 54-1-956-0120 The ALS Association
Argentina Support Group
Enrique G. Saint John
Lateral Amiotrofica
Callao 66, ler. Pise
Buenos Aires 1022 Argentina AUSTRALIA MND Association of Australia (MNDAA)
Mavis Gallienne
P.O. Box 23
Canterbury 3126
Victoria, Australia
Tel: 61-3-9830-2122
Fax: 61-3-9830-2228 E-mail: mndvic@vicnet.net.au MND Association of Victoria (MNDAV)
265 Canterbury Rd.
P.O. Box 23
Canterbury 3126
Victoria, Australia
Tel: 61-3-9830-2122
Fax: 61-3-9830-2228 E-mail: info@mnd.asn.au MND Association of New South Wales (MNDANSW)
Concord Hospital
Hospital Road
Concord 2139
New South Wales, Australia
Tel: 61-2-9743-5872
Fax: 61-2-9743-0526 E-mail: mndansw@netspace.net.au MND Association of Western Australia (MNDAWA)
Claisebrook Lotteries House
33 Moore Street
East Perth 6004
Western Australia
Tel: (08) 9325-3291
Fax: (08) 9325-3292 MND Association of Queensland (MNDAQ)
P.O. Box 259
Corinda 4075
Queensland, Australia
Tel: (07) 3372-9004
Fax: (07) 3372-9004 MND Association of Tasmania (MNDAT)
P.O. Box 379
Sandy Bay 7006
Tasmania
Tel: (0500) 827-663 Motor Neurone Disease Research Institute of Australia
Dr. Graham Lang
P.O. Box 23
Canterbury 3126
Victoria, Australia
Tel: 61-3-9830-2122
Fax: 61-3-9830-2228 E-mail: mndria@vicnet.net.au Neurological Resource Centre (NRC) - South Australia
23A King William Road
Unley 5061
South Australia
Tel: (08) 8357-8909
Fax: (08) 8357-8876 E-mail: nrc@camtech.net.au ALS - Motor Neurone Disease Research Institute
Dr. Dawn Thew
P.O. Box 635
Gordon 2072
New South Wales, Australia
Tel: 61-2-498-7960
Fax: 61-2-498-7960 BELGIUM ALS - zelfhulpgroep België
(ALS Support Group Belgium)
Oude Gentweg 105, 8000 Brugge, Belgium
Tel: 32-50-33-28-06
Fax: 32-50-33-28-06 E-mail: andre.carpels@unicall.be Association Belge Contre les Maladies Neuromusculaires (ABMM)
rue du Blanc Bois 2 - 1360 Perwez, Belgium
Tel: 32-081-65-58-85
Fax: 32-081-65-58-85
cpte n°: 001-2127789-73 E-mail: ABMM@village.uunet.be BRAZIL Associacao Brasileira de Esclerose Lateral Amiotrofica
(Brazilian Association of Amyotrophic Lateral Sclerosis)
Dr. Fernando C. Capovilla
Rua Pedro de Toledo 377, San Paulo, SP Brazil
Tel: 55-11-818-4002
Fax: 55-11-818-4909 E-mail for Dr. Capovilla: capovilla@usp.br Associacao Brasileira de Distrofia Muscular
Edificio da Biologia, Sala 348
Cidade Universitaria, San Paulo, SP Brazil BULGARIA Plamen Pintev Bulgarian Neuromuscular Disease Association
(Bulgarian Neuromuscular Diseases Association)
96 Pliska Str. Entr. 2, App. 4
Rousse 7004, Bulgaria
Tel: 359-82-237045
Fax: 359-82-452055 CANADA ALS Society of Canada
265 Yorkland Blvd, Suite 300
Toronto, Ontario Canada, M2J 1S5
Tel: 1-416-497-2267
Tel: 1-800-267-4257 (Toll-free in Canada)
Fax: 1-416-497-1256 E-mail: alscanada@als.ca ALS Society of Alberta
320 23rd Ave. S.W., Suite 400
Calgary, Alberta Canada, T2S 0J2
Tel: 1-403-228-3857
Tel: 1-888-309-1111 (Toll-free in Canada)
Fax: 1-403-228-7752 E-mail: societya@cadvision.com ALS Society of British Columbia
119-1600 West 6th Ave.
Vancouver, British Columbia Canada, V6J 1R3
Tel: 1-604-685-0737
Tel: 1-800-708-3228 (Toll-free in Canada)
Fax: 1-604-685-0725 E-mail: info@alsbc.ca ALS Society of Ontario
2025 Sheppard Avenue East, Suite 4415
Willowdale, Ontario Canada, M2J 1V7
Tel: 1-416-497-2267
Tel: 1-800-268-3301 (Toll-free in Canada)
Fax: 1-416-497-1256 COLUMBIA Ivan Dario Arteaga Fundacion Omega
Carrera 30 No. 89-79 (La Castellana)
Bogota Columbia
Tel: 57-1-236-5004
Fax: 57-1-218-3315 CROATIA Union of Muscular Dystrophy Societies of Croatia
Marija Sostarko
Nova Ves 44, 10000 Zagreb, Croatia
Tel: 385-1-466-6849
Fax: 385-1-466-6849 E-mail for Marija Sostarko: marija.sostarko@zg.tel.hr CYPRUS Cyprus Institute of Neurology and Genetics
Dr. Theodore Kyriakides
P.O. Box 3462, Nicosia, Cyprus
Tel: 357-2-358600
Fax: 357-2-358238 DENMARK Muskelsvindfonden
(The Danish Muscular Dystrophy Association)
Kongsvang Allé 23
DK-8000 Arhus C, Denmark
Tel: 45-89-48-22-22
Fax: 45-89-48-22-12 E-mail: msfoplys@post1.tele.dk Danish ALS Society
Lojesouej
3670 VEKSO (ST) Denmark
Tel: 45-2-17-01-00 FINLAND Lihastautiliitto (The Finnish Neuromuscular Disorders Association)
Läntinen Pitkäkatu 35
20100 Turku, Finland
Tel: 358-2-273-9700
Fax: 358-2-273-9701 E-mail: keskuststo@lihastautiliitto.fi FRANCE Association pour la Recherche sur la Sclérose Latérale Amyotrophique (ARS)
Claude Blanchard
24 rue Lacharriére
75011 Paris, France
Tel: 33-1-43-38-99-89
Fax: 33-1-43-38-31-59 E-mail: ars@wanadoo.fr Association Lutte et Soutien Maladies du Motoneurone (ALS - France)
Service de Neurologie et Maladies Neuromusculaires
CHU la Timone, 13005 Marseille, France
Tel: 33-4-91-38-65-80
Fax: 33-4-91-38-65-80 E-mail: alsfrance@infonie.fr Centre SLA Salpêtrière Fédération de Neurologie
Dr. Vincent Meininger, M.D. - Professor of Neurology
l'Hôpital de la Pitié-Salpêtrière
47 Boulevard de l'Hôpital
75013 Paris, France
Tel: 33-14216-0426
Fax: 33-14424-3269 Email for Dr. Vincent Meininger: vincent.meininger@psl.ap-hop-paris.fr GERMANY Deutsche Gesellschaft für Muskelkranke e.V. (DGM)
Horst Ganter
Im Moos 4
79112 Freiburg, Germany
Tel: 49-7665-94470
Fax: 49-7665-944720 E-mail: DGM_BGS@t-online.de GUAM Guam Lytico and Bodig Association
Madeleine Z. Bordallo
P.O. Box 1458
Agana 96910 Guam
Tel: 671-477-2293
Fax: 671-477-2294 HONG KONG MND/ALS Society
Micky Kui
c/o Rhone-Poulenc Rorer Ltd.
7/F Jardine Engineering House
260 King's Road, North Point, Hong Kong
Tel: 852-2503-3393
Fax: 852-2570-7120 ICELAND MND Félag Íslands
(The Icelandic MND Society)
Nordurbaut 41, 220 Hafnarfjordur, Iceland
Tel: 354-565-5727
Fax: 354-555-4374 E-mail: mnd@islandia.is MND Félag Íslands
(The Icelandic MND Association)
Nordurbaut 41, 220 Hafnarfjordur, Iceland
Tel: 354-565-2004
Fax: 354-555-2632 INDIA Motor Neurone Disease Association of India
(A project of the Vimal Bhagat Motor Neurone Disease Support Trust)
Nicky Bhagat
40 Kolagarh Road, Street No. 5, Dehra Dun (UP) 248 001 India
Tel: 91-135-624487
Fax: 91-135-623675 E-mail for Nicky Bhagat: nickybhagat@hotmail.com Indian Muscular Dystrophy Association (IMDA)
R. Janardana Rao
21-136, Batchupet, Malchilipatnam (AP) 521 001 India
Tel: 91-8672-2817 IRELAND Irish Motor Neurone Disease Association (IMNDA)
Eithne Frost
Carmichael House
North Brunswick Street
Dublin 7, Ireland
Tel: 353-1-873-0422
Fax: 353-1-873-5737 E-mail: eithne@iolfree.ie ISRAEL ATLAS, Israel ALS/MND Association
Dr. Vivian Drory
6 Hashachaf, BatGalim, Haifa 35013, Israel
Tel: 972-4-8513058
Fax: 972-4-8513059 E-mail: reis@netvision.net.il E-mail for Dr. Vivian Drory: vdrory@post.tau.ac.il Israel ALS Association
Stanley Shreiber
Kehilet Vilna 4 A, Ramat Hasharon 47220, Israel
Tel: 972-3-9341255
Fax: 972-3-9341220 ITALY Associazione Italiano Sclerosi Lateral Amiotrofia (AISLA)
Via Andrea Costa
2/A 28100 Novara NO Italy
Tel: 39-0321-392861
Fax: 39-0321-392861 E-mail: segreteria@aisla.it Associazione Sclerosi Lateral Amiotrofia
c/o Centro Medico di Riabilitazione
Via Per Revislate
28010 Veruno NO Italy
Tel: 39-0322-830101
Fax: 39-0322-830294 E-mail: aisla@mail.fausernet.novara.it JAPAN Japan Amyotrophic Lateral Sclerosis Association (JALSA)
7-103 Nando-cho, Shinjuku-ku, Tokyo, 162-0837 Japan
Tel: 81-3-3267-6942
Fax: 81-3-3267-6940 E-mail: jalsa@jade.dti.ne.jp MALAYSIA Malaysian MNDA
Prof. M. Ali Noor Ghani
c/o Malaysian Invention and Design Society
Taman Teknologi Malaysia
Lot 10, Jalan Jaya 5, Taman Jaya, Bandar Tun Razak, 56000
Kuala Lumpur, Malaysia
Tel: 60-3-931-5846
Fax: 60-3-930-0349 MALTA The Malta Hospice Movement
35 Good Shepherd Avenue
Balzan BZN 16, Malta
Tel: 356-442473
Fax: 356-484769 E-mail: hospice@vol.net.mt MEXICO FYADENMAC (Familiares y Amigos de Enfermos de la Neurona Motora AC)
Mr. Armando Nava Escobedo
Maestro Rural Num, 74, Col. Un Hogar para Nostros, 11330 D.F. Mexico
Tel: 52-5-341-1591
Fax: 52-5-341-1121 E-mail: fyadenmac@yahoo.com NETHERLANDS Vereniging Spierziekten Nederland (VSN) - ALS Diagnostic Support Group
(Dutch Neuromuscular Disease Association)
Lt. Gen. van Heutszlaan 6
3743 JN Baarn, The Netherlands
Tel: 31-35-548-0480
Fax: 31-35-548-0499 E-mail: vsn@vsn.nl ALS Diagnosis Group
This group is part of the "Vereniging Spierziekten Nederland" (VSN)
Lt. Gen. van Heutszlaan 6
3743 JN Baarn, The Netherlands
Tel: 31-35-548-0480
Fax: 31-35-548-0499
ALS Research Fund - Stichting ALS Onderzoekfonds
Mr. Eric Trietsch
van Clevelaan 8
3723 PG Bilthoven, The Netherlands
Tel: 31-30-253-3591
Fax: 31-30-253-3665 NEW ZEALAND Motor Neurone Disease Association of New Zealand
P.O. Box 2129, Wellington, New Zealand
Tel: 64-4-473-5555
Fax: 64-473-5626
E-mail: mndanz@xtra.co.nz NORWAY Kontaktgruppen for ALS
Bjorg Hille Griman
Foreningen for Muskelsyke
Hardangervegen 314, 5232 Helldal, Norway
Kontaktgruppen for ALS
Egil Sakshaug
Foreningen for Muskelsyke
Massabergveien 20 N-7710 Sparbu, Norway
Tel: 47-71143872 PAKISTAN Ma Ayesha Memorial Center for care & control of Neuromuscular Diseases
Shahida Abdullah
SNPA-22 Block 7/8 (near commercial area)
FMCHS, Karachi, Pakistan
Association of Physically Disabled Persons (Regd)
House 2 Street 40 - F
7/1 Islambad, Pakistan PHILIPPINES The ALS Association Philippines Support Group
Joel Abad Pelayo
78 Masikap Extension Central District
Quezon City 1100 Philippines
Tel: 63-2-922-8274
Fax: 63-2-922-9199
The ALS Association Philippines Support Group
Martesio C. Perez, M.D. Neurologist
Makati Medical Center
Suite E-3 First Floor
Makati, Metro Manila, Philippines PORTUGAL Associacao Portuguesa de Eaclerose Lateral Amiotrofica (APELA)
Association of Portuguese ALS Patients
Apartado 1107, 2780 Paco D'Arcos, Portugal
Tel: 351-1-915-1388
Fax: 351-1-915-1342 E-mail: costeira@hotmail.com Associacao Portuguesa de Duencas Neuomusculares
Fernando Moragdo
Servico de Neurologica, Hospital de Santa Maria
7600 Lisboa, Portugal
Tel: 351-1-797-8821
Fax: 351-1-797-7782
Associacao Portuguesa de Duencas Neuromusculares
Fernando Moragdo
Servico de Neurologica, Hospital de Santa Maria
1699 Lisboa Codex, Portugal
Tel: 351-1-797-6882
Fax: 351-1-797-6882 REPUBLIC OF KOREA (ROK) Department of Neurology, College of Medicine - Seoul National University
Kwang-Woo Lee
28 Yongon-Dong, Chongno-Gu
Seoul 110-744 Korea
Tel: 82-2-760-3215
Fax: 82-2-744-1785 ROMANIA Neuromuscular Diseases Association of Romania
Dr. C. Vasilescu
Institute of Neurology
C.P. 44-12, RO-75128 Bucharest, Romania
Tel: 40-1-3306273
Fax: 40-1-3213964
AHNR (Asociatia Handicapatilor Neuromotori din Romania)
Ioana Monica Antoci
Str. Sava Tekelija Nr. 2
Arad 2900 Romania
Tel: 40-9-6615126 or 40-5-7280582
Fax: 40-5-7250161 SCOTLAND Scottish Motor Neurone Disease Association
76 Firhill Road
Glasgow, G20 7BA, Scotland, UK
Tel: 44-141-945-1077
Fax: 44-141-945-2578 E-mail: info@scotmnd.sol.co.uk SPAIN ADELA - Asociación Española de Esclerosis Lateral Amiotrofica (ELA)
C/ Hierbabuena, 12 - 28039 Madrid, Spain
P.O. Box: 40030 - 28080 Madrid, Spain
Tel: 902-142-142
Fax: 902-118-369 E-mail: adela@readysoft.es ADELA C.V. - Asociación Valenciana de Esclerosis Lateral Amiotrofica (ELA)
Mosen Jordi, 6 / 46018, Valencia, Spain
Tel: 34-6-3794016
Fax: 34-6-3836976 E-mail: adela@seker.es AMELA - Asociación Madrilena de Esclerosis Lateral Amiotrofica (ELA)
Comunidad Madrilena
Rio Duero, 10 / 28923, Alcorcon, Madrid, Spain E-mail: jfs@mad.servicom.es SWEDEN NHR (Neurologiskt Handikappades Riksforbund)
Box 3284
S-103 65 Stockholm, Sweden
Tel: 46-8-6777010
Fax: 46-8-241315 E-mail: nhr@nhr.se NHR ALS Referensgroup
ALS-Netvork
Länsmansvägen 42, S-236 31 Höllviken, Sweden
Tel: 46 40 45 3900
Fax: 46 46 20 7330 E-mail: cg.berndt@telia.com SWITZERLAND Association Suisse Romande Contre la Myopathie (ASRM)
12 chemin de la Traverse
P.O. Box 179
1170 Aubonne, Switzerland
Tel: 41-21-808-7411
Fax: 41-21-808-8111 E-mail: asrm@planet.ch International ALS/MND Research Foundation
W. Parlette
Tiradelza de Monteggio
Termine CH-6998 Switzerland
Tel: (41) (91) 73-21-52
Fax: (41) (91) 73-22-32
MND Support Group
Sarah Browne
19 Chemin des Curiades
1233 Lully-Geneve, Switzerland
Tel: 41-22-757-4866 or 41-22-774-4646
Fax: 41-22-757-1582 or 41-22-774-4674 TAIWAN Taiwan Motor Neuron Disease Association
Neuromuscular Service - Veterans General Hospital
201 Shih-Pai Road, Sec.11
Taipei, Taiwan 11217 Republic of China
Tel: 886-2287-57585
Fax: 886-2287-57584 or 886-2287-65212 E-mail: cptsai@vghtpe.gov.tw TUNISIA ALS Society of Tunisia
Prof. M. Ben Hamida
Institut de Neurologie, La Rabta 1007 Tunisia TURKEY Association of Muscle Disorders
Prof. Coskum Osdemir
Yesilkoy, Hatboyu cad. No. 12, 34800 Istanbul, Turkey
Tel: 90-212-593-0975 or 90-212-663-6553
Fax: 90-212-663-0168
E-mail: Coskunoz@superonline.com UGANDA The Biruduma Muscular Dystrophy Association
P.O. Box 596
Mbarara, Uganda UNITED KINGDOM Motor Neurone Disease Association - England, Wales and Northern Ireland
(Home Address of the "International Alliance of ALS/MND Associations")
P.O. Box 246
Northampton NN1-2PR
United Kingdom
Tel: 44-1604-250505
Fax: 44-1604-638289 or 44-1604-624726 E-mail: enquiries@mndassociation.org Motor Neurone Disease Association - United Kingdom
P O Box 246
Northampton
Northamptonshire NN1-2PR United Kingdom
Tel: 44-1604-250505
Fax: 44-1604-624726 UNITED STATES OF AMERICA The ALS Association - USA - National Office
27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301-5104 USA
Tel: 1-818-880-9007
Fax: 1-818-880-9006
Tel: 1-800-782-4747 (Toll-free Patient Hot Line) E-mail: alsinfo@alsa-national.org Muscular Dystrophy Association (MDA) - USA National Headquarters
3300 East Sunrise Drive
Tucson, AZ 85718 USA
Tel: 1-800-572-1717 (Toll-free in USA)
Tel: 1-520-529-2000
Fax: 1-520-529-5417 E-mail: mda@mdausa.org URUGUAY MONDELA (Asociacíon Nacional para la Lucha contra las Enfermadedes
Motorneuronales o Esclerosis Lateral Amiotrofica)
Dr. O. Vincent
Colonia 1752, Montevideo, Uruguay 11400
Tel: 598-2-709-4990
Fax: 598-2-401-8188 or 598-2-619-6461
MNDALSU (Motor Neurone Disease & Amiotrofia Lateral Esclerosis in Uruguay)
Dr. O. Vincent
Ave. Italia 3318, Montevideo, Uruguay
Tel: 598-2-471616
Fax: 598-2-475461 YUGOSLAVIA Yugoslav MND Association
Dr. Subotica br.6
11000 Belgrade, Yugoslavia
Tel: 381-11-684-355
Fax: 381-11-684-577
E-mail: zsmndyu@hotmail.com |
